Whew! It has been a busy day in Bellaville. She was able to have her CT scan this morning, which is great because that means she can be listed for the hepatocytes now. Unfortunately it meant that she had to go longer than she preferred without eating, and she did not recognize the 1 hour sedation as a nap. Thus she came back to her room VERY upset, to the point where I couldn't feed her because it wouldn't go in her tube. We finally got her calmed down and hooked up to a feeding pump, and she got some formula in her tummy. By 1:00 we had our Bella back, and she was doing a roller derby in her crib. Bad news for her is that she is her only opponent in Bella Derby, and she is bound to lose. She is finally napping, and hopefully she gets at least an hour under her belt.
The other good news is that her doctors are hoping to discharge us to the Ronald McDonald house soon. This is conditional, as we don't know if they have room for us in the house yet, and we need to make sure her ammonia is still under control. Everyone cross your fingers, because Mommy needs a better night's sleep than she had last night. Otherwise Stevie is going to get here tomorrow to find his wife has turned into a grizzly bear!
Love the updates Courtney! Love the picture of Bella unpacking, so cute! Glad to hear things are undercontrol and am praying you have better sleep tonight! I gave a bunch of cards to Tammy to hand off to Steve for you and Bella! Sounds like your students would love to see a picture of you and Bella looking at the cards! Would be super cute, the cards are so fantastic! Thinking of you all the time! Well wishes from VT!
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ReplyDeleteAddie and Lily are asleep, the chickens are noisy, the pigs are quiet, the stovepipe is in position, Stevie is pacing, and I am comforted by the knowledge that you have the faith in all of this to be with our Bella in Pittsburgh. Rest, tonight, my first born, knowing that our "home" is made of love and dreams and that our foundation is solid.
Hi Courtney and Bella! Thanks for setting up the blog, now I can follow your progress day by day. I wish I could be with you, Aunt Lucy
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